Making Ill-Defined Concepts Measurable
April 5th, 2024
Electronic health records can only be searched for conditions that have already been named, characterised, and assigned a diagnosis code; for emerging conditions, establishing that definition takes years, leaving incidence unmeasurable in the meantime. In collaboration with Pfizer, we developed a three-step process to derive a condition definition from patient records alone; we applied it to post-COVID conditions, where it identified 6.6 times as many cases as the official diagnosis code.